Jenny Burke
Board of Directors, FamilieSCN2A Foundation, USA
In 2012, Jenny Burke was grateful to finally have a diagnosis for her son, Alex, who has suffered from devastating seizures since birth. But it wasn’t until Leah Schust connected with her three years later that she began to have hope in finding a cure for this rare genetic disorder. Jenny draws on her experiences in the publishing industry and as a small business owner to help the FamilieSCN2A Foundation reach its research and fundraising goals. She feels blessed to be working from home on behalf of all families affected by SCN2A related disorders while caring for her family (Alex's big brother, Sam, and husband, Mike) and volunteering in the local community. She lives in Sterling, Virginia.
Video from this speaker:
