Volunteer for the SCN2A community in Germany and Europe
Svenja is mother of five years old Caroline who has a mutation in the SCN2A gene.
The first years were difficult with many stays in hospitals. But today, Caroline, though severely disabled, can manage her seizures pretty well, enjoys life and gives her mother the time and inspiration to start supporting the SCN2A community.
Svenja has joined the Family Conference organization committee just recently in June 2021 and is looking forward to help strengthening the connections between SCN2A families in Germany, Europe and beyond in order to stand up together for better support for our children.
She holds a PhD in Molecular Biology.