Founder and Trustee of SCN8A UK & Ireland
Ben is a founding trustee of SCN8A UK & Ireland. Ben’s daughter, Tilly, has SCN8A. Ben is SCN8A’s representative at EURODIS’s European Patient Advisory Group (EPAG) and involved in collaborating with SCN8A groups throughout the world, such as the Cute Syndrome Foundation (US) along with rare epilepsy groups in the UK and Europe.
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